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Genetic Alliance UK
Results: 131

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21	Empyema Management in Paediatrics Add to Reading List Source URL: www.apsu.org.au Language: English - Date: 2012-12-26 17:58:01 Healthcare Epidemiology Orphan drug Amyotrophic lateral sclerosis Health care provider Health care Rare Disease Day Genetic Alliance UK Health Medicine Rare diseases
22	World Rare Disease Day 28 February 2011 World Rare Disease Day is a global event held annually on the last day of February. Its main objective is to raise awareness of rare diseases and their impact on not only the kids Add to Reading List Source URL: www.awch.org.au Language: English - Date: 2014-01-18 05:49:10 Medicine Lipid storage disorders Rare Disease Day European Organization for Rare Diseases Fabry disease Orphan drug Disease Genetic Alliance UK Health Epidemiology Rare diseases
23	Microsoft Word - Rare diseases National Plan-Final Draft19-01-10 Add to Reading List Source URL: www.apsu.org.au Language: English - Date: 2012-12-26 19:58:00 Rare diseases Epidemiology Health care Chronic Genetic Alliance UK Rare Disease Day Health Medicine National Institutes of Health
24	Gala_2015_layout_Final_sm.indd Add to Reading List Source URL: www.raredisorders.ca Language: English - Date: 2015-03-18 11:02:33 Medical terms Rare disease Canadian Organization for Rare Disorders Disease Rare Disease Day Genetic Alliance UK Epidemiology Health Medicine
25	Microsoft Word - 2011_Tbilisi_IId_Confer_Rare _Diseases_EN.doc Add to Reading List Source URL: www.csma.org.ua Language: English - Date: 2011-11-04 07:14:53 Health economics Rare Disease Day European Organization for Rare Diseases Public health Chronic Spinal muscular atrophy Genetic Alliance UK Health Epidemiology Rare disease
26	Fundraising Pack Ideas for raising money to help us support families of children with undiagnosed genetic conditions. SWANchildrenUK Add to Reading List Source URL: undiagnosed.org.uk Language: English - Date: 2014-04-22 08:37:43 Fundraiser Rag Swan Charitable organization Economics Structure Business Fundraising Philanthropy Genetic Alliance UK
27	[Insert your address] [Insert name of your local MP] MP House of Commons London SW1A 0AA Add to Reading List Source URL: www.raredisease.org.uk Language: English - Date: 2015-03-19 13:37:38 Rare diseases Health Genetic Alliance UK
28	*For immediate release* Rare Disease UK calls for uniform implementation of UK Strategy for Rare Diseases Ahead of international Rare Disease Day which this year takes place on Saturday 28 February, Rare Disease UK Add to Reading List Source URL: www.raredisease.org.uk Language: English - Date: 2015-02-27 06:42:55 Medical terms Rare diseases Genetic Alliance UK Rare Disease Day Chronic National Health Service Disease Genetic disorder Health Epidemiology Medicine
29	EUROPEAN RARE DISEASES DAY: TOP FACTS ON EU ACTION A disease or disorder is defined as rare in the EU when it affects less than five in every[removed]citizens. Yet, because there are so many different rare diseases – be Add to Reading List Source URL: ec.europa.eu Language: English - Date: 2015-02-27 04:27:48 Epidemiology Pharmaceutical sciences European Organization for Rare Diseases Orphanet Pharmaceutical industry Genetic Alliance UK Orphan drug Health Science Rare diseases
30	CITIZENS’ SUMMARY EUROPEAN ACTION IN THE FIELD OF RARE DISEASES WHAT IS A RARE DISEASE? • Add to Reading List Source URL: ec.europa.eu Language: English - Date: 2015-01-12 10:23:34 Medical terms Rare disease European Union Disease Health care Genetic Alliance UK Patient safety Health Medicine Epidemiology